Note that these resources are on the HHS site on Privacy and Security
The executive summary indicates
This discussion raises the issue of data segmentation, which we define for the purposes ofThe executive summary concludes
this paper as the process of sequestering from capture, access or view certain data
elements that are perceived by a legal entity, institution, organization, or individual as
being undesirable to share. This whitepaper explores key components of data
segmentation, circumstances for its use, associated benefits and challenges, various
applied approaches, and the current legal environment shaping these endeavors.
Data segmentation in the health care context can support granularity of choice with
respect to the following:
- What specific data are eligible for exchange (from individual data elements to defined categories of data, such as all behavioral health records);
- Who has access to the information (from individual providers to other health care entities);
- Under what circumstances access is granted (e.g., emergency access, treatment, etc.); and
- For what period of time access is granted (e.g., unlimited, one-time access, etc.)
As such, it will be important for policy makers to consider various approaches to movingThe report is very extensive.
not only the discussion, but also the meaningful realization of data segmentation,
forward. Data segmentation efforts to date have explored a variety of approaches that
show some early, but limited, success. To accelerate this forward momentum, we would
suggest, among other pursuits, the following:
- Build a Bridge to Greater Autonomy: Rely on policy levers that will move us closer to the goal of supporting individual, subjective preferences for information management;
- Provide Direct Financial and Other Support to Stimulate Change: Consider various means of supporting the development of segmentation-enabling processes and technologies; and
We support the idea of casting a wide net in search of appropriate means of providing
- Generate Evidence: Given the significance of the transformation from paper to electronic means of data capture and sharing, establish and execute on a set of updated research priorities.
patients more granular control over the exchange and use of their identifiable health
information, and point to the efforts underway in other countries as evidence that this is a
worthwhile endeavor. While still a challenge, data segmentation holds promise for
accomplishing the ultimate goal of accommodating the needs and desires of the multiple
stakeholders engaged in the electronic exchange of health information.