HIT Policy Committee Meaningful Use Workgroup
Tuesday, April 20, 2010, 9 a.m. to 3:30 p.m./Eastern Time
Panel 1: Meaningful Use of HIT in the Real Lives of Patients & Families
Moderator: Christine Bechtel
Scott Mackie, Health & Wellness, IDEO, Inc.
Eric Dishman, Director, Health Innovation & Policy, Intel Corp.
M. Chris Gibbons, Johns Hopkins University Urban Health Institute
Neil Calman, MD, Institute for Family Health
Regina Holliday, patient voice
Panel 2: Incorporating Patient-Generated Data in Meaningful Use of HIT
Moderator: David Lansky
James Ralston, Group Health Research Institute
Patti Brennan, University of Wisconsin, Project Health Design
Carol Raphael, Visiting Nurse Service, NY
Dave DeBronkart, ePatient Dave
David Whitlinger, NY eHealth Collaborative
Hank Fanberg, Christus Health
Panel 3: Policy Challenges & Infrastructure Requirements to Facilitate
Patient/Consumers’ Meaningful Use of HIT
Moderator: Deven McGraw
Joy Pritts, Chief Privacy Officer, Office of the National Coordinator
James Weinstein, Dartmouth Institute for Health Policy & Clinical Practice
Carl Dvorak, Epic Corporation
Cris Ross, MinuteClinic
However I was very frustrated that the little nuggets of new information in the testimony was overshadowed by the passion of the message. I never once heard a question from the committee members that was on these nuggets. The questions were mostly on the parts that the healthcare community continues to hash over and over. I kept expecting the chairman to summarize these nuggets.
The main message I extracted out of testimony, that I think was more-or-less lost on the committee, is that there is a HUGE amount of miss-information around what the Law says. Over and over I heard people asking for access to their health record. This 'right' was very clearly given to the patient in the HIPAA rules, and was further given again in ARRA. If it was given to the patient yet again, I don't think anything would change. Clearly the problem here is that the healthcare community doesn't understand the clear text in the current text. This is a gap of training, not a gap of regulations. This lack of training was not unique to access to the health record, there were many other topics that boil down to the same problem.