Some background on what the broader government (HHS) under the office of the national coordinator (ONC) is saying about Patient Generated Health Data (PGHD). This is not a very mature definition yet, mostly because of wildly divergent abilities given to patients among the 6000 healthcare provider organizations in the USA. However the details outline here have held up well. This is what we wanted 5 years ago, it is still what we want. This includes the risks outlined 5 years ago, they are still risks today. The details on this page are mostly from January 2018.
The bad news is that we have not progressed as much as we thought we would have 5 years ago.
https://www.healthit.gov/topic/scientific-initiatives/patient-generated-health-dataThe infographic is the most useful thing on this page. It covers the points quite nicely and clearly.
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