Patient-Centered (aka Patient-Engaged)
- Provide an Access Log. I would say Accounting of Disclosures, but there are simply too many exceptions that this results in a useless log. I want an Access Log, that is a log of every time my data was accessed (Direct or Exchange) using the WISHIN infrastructure. Who requested the access? What did they ask for? What did they get? When was this? Where was this? Why did they access (PurposeOfUse)? There no network that I know of that provides a view of how the HIE was used to expose the Patient data. I recognize the concern that Covered Entity have that gives us "Normal Operations" exceptions. I don't like these exceptions, but I understand why they exist. I think that ALL accesses over an Exchange need to be reported to the Patient.
- Provide API access for applications the Patient chooses and authorizes. In the past this would be covered by a statement of "PHR", but that concept is too limited today. This item is inclusive of the older concept of a PHR, but is also inclusive of newer health Apps. Where a PHR was a system that would copy the patient data and give the patient the ability to connect apps to that copy of the data; now we are looking to use FHIR as a way to connect these Apps directly to the data. These apps will tend to just need read-only access, but...
- Provide capability of the Patient to author data. Many patients, myself included, are using many home-care devices, personal-care devices, health-monitoring devices, and sports related devices. These are producing a wealth of information, much of it is just background measurements. These measurements are not accessible to Providers unless they can be contributed on-behalf of the Patient.
- Provide the Patient to challenge the validity of data. Once we can see the data, we will surely find some mistakes. Being able to challenge the validity of the data is essential. Even HIPAA acknowledged the need for the Patient to 'Amend" their data. I say challenge as to be closer to "Patient-Centered" or "Patient-Engaged".
What is your ideas????? Please post comments